Trial: Health after childhood cancer 

Today, four out of five children and adolescents with cancer are treated successfully, but around 80 per cent of the survivors have to struggle with late effects of the disease and intensive therapy. The Swiss Childhood Cancer Survivor Study is a nationally and internationally unique cohort study that systematically researches the late effects of childhood cancer and their risk factors.

Aim of the trial

The Swiss Childhood Cancer Survivor Study (SCCSS) makes an important contribution to understanding the long-term consequences of having cancer as a child or adolescent. In addition to the physical late effects, the focus is also on the quality of life and possible psychosocial problems, perhaps at school or in working life. The knowledge gained will help to improve the treatment, follow-up and quality of life of former and future patients.

SCCSS was launched in 2007 in close collaboration with the Swiss Childhood Cancer Registry (SCCR) and the Departments for Haematology / Oncology (Paediatrics) throughout Switzerland and has become a comprehensive and complex research programme.

Implementing organisation

Institute of Social and Preventive Medicine (ISPM), University of Bern